Dystonia is a little-known brain disorder, and not only among the public. Recent studies show that 40% of dystonia patients wait two to five years before correct diagnosis because of a lack of understanding of the disorder among healthcare professionals.

 

Dystonia Talks is a digital project which aims to raise awareness about dystonia from the perspectives of patients, healthcare professionals and experts. The aim is to help speed up diagnosis and access to treatment, thus granting a better quality of life for dystonia patients.

 

Dystonia Europe is the international platform at the European level for all dystonia stakeholders, which aims to improve the lives of people living with dystonia, stimulating research for more effective treatment and ultimately finding a cure.

 

The first Dystonia Talks videos were released during Dystonia Awareness Month in September 2019 and can be viewed now on the Dystonia Europe Youtube channel.